Special Thanks to Lambda Phi Epsilon
Cammy Lee Leukemia Foundation, Inc.

Board of Directors:

James Chang
Kevin Ching M.D.
Sharon Lau
Stella Lee Leong

Kailee Wells

Kailee Wells

Diagnosed: Aplastic Anemia
Ethnicity: Chinese
Location: Milwaukee, Wisconsin

Website: http://www.kaileegetwells.com

From Kailee's website:

"My name is Kailee Makena Wells. My Mommy and Daddy adopted me from China when I was just a little baby. On January 14, 1997, when I was just ten days old, I was found on the steps of the Teacher's Training Institute in Changde in the Hunan Province of China. They took me to an orphanage where I lived for a year before my Mommy and Daddy were able to adopt me. I lived in Albuquerque, NM with my family until we came to Milwaukee, WI to be in the care of Dr. David Margolis and his great team of specialists in my illness, Aplastic Anemia, bone marrow failure, at Children's Hospital.

Kailee and her parents Linda & Owen Wells
Kailee and her parents Linda & Owen Wells

I turned eight on January 4, 2005. In the days following my fifth birthday celebration I began having a tummy ache, cough and runny nose. It got worse, and I was having fevers so high that my Mommy and Daddy took me to the Emergency Room where the doctor told them I just had a virus and gave me some medicine to make me feel better. But I didnt start feeling better. I started feeling worse. A few days later my parents took me to my doctors office, and again they were told I had a virus and would be better soon.

Kailee and her mom
Kailee and her mom

A few days later my nose started bleeding and didnt stop for five long hours. This time my doctor took a blood sample, and after she got the result she said I was very sick and had to go straight to the Pediatric Intensive Care Unit.

At the hospital, more tests were done, and the doctors found that I had very few blood cells at all. I had to have a bone marrow biopsy which showed that I have something called aplastic anemia. This is a very rare and often fatal disease which means that my bone marrow is not making any new blood cells. Without successful treatment I will quite literally run out of blood and die. 

Dr. Margolis with Kailee in the hospital
Dr. Margolis with Kailee in the hospital

I have tried Horse and Rabbit ATG, Zenapax and a bone marrow transplant which have all been very scary. I have to be very careful to avoid infections and bleeding and to watch for bad reactions to my treatments. My Mommy and Daddy are praying the medical treatments we have tried works.

My doctors are still trying to locate a match for me. My biological family would be the best probable match. Unfortunately, we know nothing at all about them. Asians and Pacific Islanders are a little more likely to match, although people of any race could be a match for my bone marrow type."

Updated: 6/2005

 

 
< Prev   Next >